Robert F. Kennedy Jr. recently gave voice to a truth many families like mine have been living for years—that the autism epidemic is not being met with honesty, urgency, or compassion by our public institutions.
As a mother of a non-verbal, medically complex child with autism, I need the world to understand that this crisis is not just about rising numbers—it’s about the complete lack of meaningful support for our children and families. While neurologists are tasked with providing a clinical diagnosis, what follows is almost always the same script: a push for ABA therapy and Clonidine or other medications, with no exploration of root causes, underlying medical conditions, or even individual needs.
What happens when ABA fails because it forces compliance over neuro affirming practices to learn? When medication backfires? When a child is so dysregulated from gut inflammation, mold toxicity, or mitochondrial dysfunction that behavioral therapy alone is not only ineffective—it’s harmful?
I’m here to show you Charlie’s medical tests—her GI maps, her OATs, her urine mycotoxin panels. She is not a behavior problem. She is a medically complex child whose pain is being ignored because our system doesn’t know how to see her.
Schools claim they “can’t support” her. Communities lack inclusive spaces. Meanwhile, the burden falls entirely on families—who are exhausted, dismissed, and forced to navigate this maze alone.
RFK Jr. is right. We need to ask why this is happening. We need better diagnostic criteria, integrative treatment pathways, and a whole-child approach that validates both medical and neurodevelopmental needs. We need inclusive education, accessible therapies, and accountability at every level—from healthcare to schools to our government.
My daughter deserves more than a label. So does your child. They deserve a future.
Share post:
What If It’s Not Behavior? Understanding the Gut-Brain Connection in Neurodivergent Kids
When a child struggles with meltdowns, sleep issues, early signs of puberty, or unexplained aggression, the default assumption is often “behavioral issues.” But what if
Teaching Our Children and Our Communities About Inclusivity
At Spectrum Support Services Foundation, we believe that true change starts small—often with the littlest learners among us. The way we teach our children about
Microbiome & Autism: Decoding Gut Imbalances Through Stool Testing
Whole-Child Considerations: The Importance of Urine and Stool Testing for Autism Treatment Disclaimer: This is not medical advice but rather an effort to raise awareness